Pregnant women take folic acid to prevent neural tube defects
Scientists have begun a study to determine if an everyday vitamin supplement could help prevent one of Britain's most common birth defects.
Every year about 100 children in the UK are born with spina bifida and other neural tube defects.
Prospective mothers are advised to take folic acid as a way of preventing the condition.
However, scientists think the vitamin inositol, taken with folic acid, may be more effective at preventing defects. To read more click here
To read ASBAH's response to this important development click here
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CUTS IN PUBLIC SPENDING ON THE WAY
Have your say on what stays and what goes
Cuts in public spending are on the way. We know the NI Assembly has to find £1.2 billion in public spending cuts. There will be tough decisions to be made and the Consumer Council wants you to get involved.
Now is the time to make your voice heard and help shape how these cuts are managed by government. Have your say at one or both of the Consumer Council's open meetings on how these cuts may affect you, your family and friends. The Consumer Council will bring your views to the NI Executive Ministers and fight hard for what you believe must stay, what goes and how public services can be improved in the future. One meeting is being held in Cookstown on Thursday 9 September from 10 am to 1 pm and the other is in Belfast on Thursday 16 September from 6-9 pm. Refreshments will be available at both meetings. For full details and how to register click here
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IFA DISABILITY FOOTBALL CLUBS
Details have been received from the IFA of disability football activities in various venues across Northern Ireland open to junior and senior males and females. To read the details click here for Belfast. For BANGOR, COLERAINE, OMAGH and LURGAN click here
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CONSULTATION BEGINS ON GUIDANCE ON THE TERMINATION OF PREGNANCY IN NORTHERN IRELAND
Revised guidance on the termination of pregnancy in Northern Ireland was issued for public consultation on 27 July, 2010.
The Department of Health, Social Services and Public Safety (DHSSPS) had previously published guidance in March 2009 on the termination of pregnancy in Northern Ireland. However in November 2009 the Guidance was subject to a Judicial Review. Following the Judicial Review decision, interim Guidance was published in February 2010 with the sections on conscientious objection and counselling omitted. This interim Guidance has now been withdrawn.
The Department has redrafted the sections on counselling and conscientious objection and has incorporated these into revised Guidance which is now issued for consultation.
The consultation period will run for a period of twelve weeks from 27 July 2010 ending on 22 October 2010.
This guidance can be accessed on the DHSSPS website at http://www.dhsspsni.gov.uk by clicking on the DHSSPS e-consultation link. Copies of the guidance are also available on request by contacting: Family Policy Unit, Castle Buildings, Stormont Estate, Belfast BT4 3SQ or telephone: 028 9052 0530.
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NIASBAH REPORT ON DUBLIN IF CONGRESS
Doreen Lyness attended the International Congress in Dublin in June, 2010, on behalf of the Belfast Branch of NIASBAH and Sid McDowell attended as Vice-President of NIASBAH. They have prepared a report on the Congress. Read more
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Warm Homes Scheme - www.warm-homes.com
H & A Mechanical Services have been appointed as Scheme Managers of the Warm Home Scheme on behalf of the Department for Social Development. The Warm Homes Scheme is designed to address fuel poverty among the most vulnerable in our community.
If you need help paying for heating and insulation improvements in your privately owned or rented home, you, your partner or civil partner may be able to get help from the government's Warm Homes Scheme. The Warm Homes Scheme provides a package of energy-efficiency and heating measures. Energy-efficiency advice, tailored to each household, is provided in accordance with the Energy Savings Trust's Code of Practice.
To find out more or apply call the Warm Homes Scheme Manager on Freephone:
*
0800 988 0559
Lines open Monday to Friday 9am to 5pm. *Calls from a landline are free www.warm-homes.com
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NORTHERN IRELAND CHARITY CELEBRATES 40th ANNIVERSARY IN STYLE
Northern Ireland Association for Spina Bifida and Hydrocephalus celebrated their 40th Anniversary recently with a fun packed and emotional FUN DAY celebrating the journey over the past 40 years.
With families turning up from all over Northern Ireland, almost 300 people found their way to Springhill, Moneymore to join in the celebrations and festivities.
Children, families and individuals enjoyed a mixture of brilliant forms of
entertainment.
Sid McDowell, CBE, NIASBAH's Vice- President said:
“A brilliant day was had by all, with loads of people turning up for the BBQ and the flower arranging for children was especially popular. There was also plenty of enthusiasm for the fabric flower making for adults, magic shows, puppet shows, exotic animals, disco/dance, face painting, treasure Hunt and all the rest of the days activities.
“The day was a great way to say thank you to all the people associated with NIASBAH for the help and support they have given over the years to help maintain essential services for children, families and individuals throughout Northern Ireland. And the day was helped by our colleagues from ASBAH'S Regional Office (one of whom was a good friend of Mickey Mouse) and it was supported by the Big Lottery Fund”
Any families or individuals that have any questions or require information relating to spina bifida and/or hydrocephalus can contact NIASBAH by visiting
http://spinabifida-ni.org
To view the photos of the day please visit
http://spinabifida-ni.org/NIASBAHFunDayPhotos.aspx _____________________________________________________________________
BE PREPARED-THE CHARITY COMMISSION HAS STARTED WORK
The Charity Commission for Northern Ireland has appointed its first Chief Executive. She is Frances McCandless and took up her post with effect from 8 April 2010. She will be responsible for leading the organisation in the establishment of a regulatory framework for the charitable sector in Northern Ireland. Ms McCandless joins the Charity Commission NI from the Northern Ireland Council for Voluntary Action (NICVA) where she served as Director of Policy for 14 years. She has extensive experience working within the voluntary and community sector.
Hard on the heels of this appointment The Charity Commission NI (CCNI) has announced indicative dates for its work over the coming months to enable charities in Northern Ireland to prepare for the introduction of the charity register.
During April CCNI will receive the details of around 7,000 organisations from HM Revenue and Customs. These are organisations currently deemed to be charities for tax purposes. They will make transitional arrangements for these organisations by placing them on a list called the Currently Deemed Charities List. This is not the new register, but a list which will be publicly available on the CCNI website. While the organisations remain on this list, they will retain their charitable status with HMRC. CCNI will then start to transfer the 7,000 organisations gradually on to the new charity register, making individual determinations on each one to see if they qualify as charities under the Charities Act (NI) 2008. THey will start with 20 organisations to test out the new online registration system and take feedback from the organisations registering. They will then write to the others inviting them to register over the next 18 months – probably inviting organisations with a large income first and then working their way down through the rest.
This is a very significant event for charities operating in Northern Ireland. You can find fuller information by clicking here.